Thank you for your interest in utilizing the resources of the Williams Syndrome Patient and Clinical Research (WSPCR) Registry!
The WSPCR Registry is not a listserve. It is a tool that connects individuals with WS and their families to those interested in performing new research and treatment studies. You can use the links on this page to create an account with the Registry. Once you account is activated you may search the Registry's de-identified database and submit a study proposal. After your proposal is approved, you will receive access to contact information for families interested in your study.
(Families- please go to the For Families- Join Now tab to learn how to join the Registry.)
Steps For Researchers to Create an Account with the Registry
- Click on the following link to begin the simple, one-time-only, Registration Process: Click here for Researcher Registration. You will first be asked to view and agree to a statement that you are a Researcher; then you will begin the process of creating an account with the Registry.
- Complete the six Registration Questions supplying some basic contact information. Then select a username and password.
- Once your Registration has been approved you will be able to log on to your Home Page by clicking the link "Your Home." From there you may access Simple Searches as often as you like and submit as many Study Proposals as you like.
- You only have to create an account with the Registry once.
Questions you may have
What if I am already registered and receive an email telling me my account has been activated?
If you receive an email regarding activation of your account you are now able to log on to "Your Home" page. Please click the link "Site Login" and enter your username and password. Only activated Researcher accounts are able to log in.
What if I am already registered, but forgot my User Name or Password?
If you forget your username or password, please do not create a new account. Please use the Forgot User Name and Password link on the Site Login page. You may also email Jessica Waxler, the Registry Coordinator to assist you.
