The WSPCR Registry

The WSPCR Registry has been created to improve our knowledge about WS so that ultimately better treatments for individuals with WS may be developed.

The MGH team developing the WSPCR Registry for the WSA, in consultation with professionals from other centers, has dedicated expertise in the field of WS (click here to meet the staff). Together we have designed the Registry in a way that we hope serves your needs and that of persons with WS.

However, we want your comments and feedback! Please contact us with your ideas as to how the Registry can better serve you, your child, or your legal dependent with WS, or the WS community at large.

Contact Us at the Registry:

By Email: WSRegistry@partners.org

By Mail:

MGH, c/o Dr. Barbara Pober

175 Cambridge Street, Room 502
Boston, MA 02114
Attn: WSPCR Registry

By Phone 617-726-5318

By Fax 617-724-1911