| Authorization Statement |
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A description of the purpose, risks and benefits of the Registry; before you can join the Registry, you will be asked to read the Authorization Statement and indicate you understand its contents. |
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| Questionnaire |
A series of questions about the medical and developmental health of the person with WS who is being signed up for the Registry. |
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| Legal guardian |
The legal representative of an individual with WS (such as a sibling or relative), if parents are no longer serving in this capacity. |
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| Natural history |
Changes in features and symptoms over time |
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| Registry Participant |
The person with WS who is being signed up for the Registry. |
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| Registry |
The Williams syndrome Patient and Clinical Research (WSPCR) Registry |
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| WS |
Williams syndrome. A genetic disorder associated with a characteristic pattern of medical and developmental problems. For additional information see www.williams-syndrome.org and www.ghr.nlm.nih.gov/condition=williamssyndrome |
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| WSA |
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Williams Syndrome Association. A non-profit parent support group for individuals with WS and their families (see www.williams-syndrome.org). |
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| WSPCR Registry |
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Williams Syndrome Patient and Clinical Research Registry |
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